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TSANZ Symposium: Emerging challenges in the CF clinic

Tracks
Track 4
Monday, March 25, 2024
3:30 PM - 5:00 PM
Meeting Room 5

Speaker

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Prof Claire Wainwright
SMO Respiratory Medicine
University of Queensland / Queensland Children's Hospital

Infection in the CFTR modulator era

3:30 PM - 3:50 PM

Biography

Professor Claire Wainwright is a paediatric respiratory physician and Co-Lead for cystic fibrosis services at the Queensland Children’s Hospital in Brisbane Australia which manages around 470 children with CF. Claire started her training in London and completed her training in paediatric respiratory medicine at the Royal Children’s Hospitals in Brisbane and Melbourne. Her research interests include clinical trials, development of lung disease in CF, airway microbiology, acute viral bronchiolitis, metabolic problems and patient reported outcomes in CF.
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Prof Adam Jaffe
Professor of Paediatrics
Sydney Children's Hospital

"Precision" use of CFTR modulators

3:50 PM - 4:10 PM

Biography

Prof Jaffe is the John Beveridge Professor of Paediatrics and Head of the Discipline of Paediatrics and Child Health, School of Clinical Medicine at UNSW Sydney, and Paediatric Respiratory Consultant at Sydney Children’s Hospital. Prof Jaffe undertook his MD thesis in gene therapy for children with cystic fibrosis at Imperial College, London. Previously he was Consultant in Respiratory Research at Great Ormond Street Hospital for Children, London before moving to Australia in 2006. His main research interest is in translational research in children with cystic fibrosis and other rare childhood lung diseases, and is the Director of the miCF Research Laboratory for Precision Medicine in Cystic Fibrosis. He is the chair of the Asthma Australia Research Advisory Committee and Rare Voices Australia Scientific and Medical Advisory Committee.
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Prof Scott Bell
Senior Physician
The Prince Charles Hospital

Equipoise and conduct of clinical trials in the CFTR modulator era

4:10 PM - 4:30 PM

Biography

Professor Scott Bell is the Chief Executive of the Translational Research Institute and a Senior Physician of the Adult Cystic Fibrosis Centre at The Prince Charles Hospital where he has worked since 1996 in Brisbane. He was Director between 1996-2015. As a clinician scientist, he leads the Lung Bacteria Laboratory at UQ. Scott has >300 peer reviewed publications and has received grant support >$24 million. His research interests include acquisition and transmission pathways for human infection and his multi-disciplinary research has resulted in significant changes to clinical practice and policy implementation globally. He has been principal investigator on numerous pivotal CFTR modulator trials. He was the Editor of the Journal of Cystic Fibrosis from 2013 until 2020 and co-led the Lancet Commission on the future of CF care which was published in 2020.
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Dr Jennifer Taylor-Cousar
Professor of Medicine and Paediatrics
National Jewish Health

What about us? What’s in the pipeline and how to keep hope alive in those not on CFTR modulators

4:30 PM - 4:55 PM

Biography

Dr. Taylor-Cousar is a tenured Professor of Internal Medicine and Pediatrics at National Jewish Health where she cares for children with pulmonary disease and adults with Cystic Fibrosis. She was appointed as the Medical Director of Clinical Research Services for NJH in July 2017 and is currently the President of the Medical Staff. She is also the Co-Director of the Adult CF clinical program and the Director of CF Therapeutics Development Network research for the adult CF program. Her expertise is in clinical trial design and conduct, and therapeutic development for the treatment of CF lung disease. She is also actively evaluating the etiology and treatment of lung disease in orangutans (97% genetic homology with humans).
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Dr Bernadette Prentice
Respiratory Staff Specialist
Sydney Children's Hospital

Chairperson

3:30 PM - 5:00 PM

Biography

Dr Sheila Sivam
Physician
Royal Prince Alfred Hospital

Chairperson

3:30 PM - 5:00 PM

Biography

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Prof Peter Wark
Professor
Alfred Health

Chairperson

3:30 PM - 5:00 PM

Biography

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