Symposium session: The lived experience of sleep disorders: the importance of patient perspectives in research and clinical practice
Tracks
Track 3
| Friday, October 18, 2024 |
| 10:30 AM - 12:00 PM |
| Room 5 |
| Sponsored By: |
Overview
Sponsored by Fisher & Paykel Healthcare
Details
Sleep disorders have a significant impact on the quality of life for millions of people, but the importance of patient perspectives in research and clinical practice is not well understood. This symposium will begin with an introduction to the value of lived experience, and will discuss the #PatientsIncluded movement and how patient perspectives can help inform advocacy, education, research, policy and practice. We will explore the impact of sleep disorders from the perspectives of people with lived experience, and will include interviews from a diverse range of people with sleep disorders. We will also share our experiences establishing lived experience groups. This symposium is held in conjunction with Consumer Reference Groups from the Sleep Health Foundation and the Adelaide Institute for Sleep Health.
Speaker
Prof Robert Adams
Professor Of Respiratory And Sleep Medicine
Flinders University
Value of lived experience to research and clinical practice, challenges and barriers
10:30 AM - 10:40 AMBiography
Assoc Prof Amy Reynolds
Associate Professor, Clinical Sleep Health
Flinders University
The #PatientsIncluded movement: What do we need to consider in sleep medicine for research and conferences?
10:40 AM - 10:55 AMBiography
Associate Professor Amy Reynolds is a clinical epidemiologist and provisional psychologist with research expertise in the relationships between non-standard work schedules (particularly shift work), health and safety. She is the current co-lead of the insomnia, shift work and body clock disruption theme at the Adelaide Institute for Sleep Health, Flinders University.
Her key research focus is the experiences of shift workers living with sleep problems, many of which go undiagnosed and untreated for extended periods of time. She uses mixed research methodologies in her research program, including working with large datasets, such as the multigenerational Raine Study, qualitative approaches, and intervention trials.
Dr Jenny Haycock
Research Associate
Flinders University
The impact of sleep disorders, including common themes from qualitative research with people with lived experience
10:55 AM - 11:10 AMBiography
Dr Jenny Haycock is a Research Associate at the Adelaide Institute for Sleep Health, Flinders University. Her primary interests include access to effective behavioural treatment for insomnia and the management of sleep disorders in primary care. Jenny also has an interest in implementation science, research translation and consumer led and co-designed research. She is the co-chair of the Sleep Health Foundation Lived Experience Advisory Partners group and co-chair of the Australasian Sleep Association Primary Care Council.
Dr Charlotte Gupta
Research Fellow
CQ University / Appleton Institute
Lived experience of sleep disorders (featuring recorded interviews), and personal views and experiences living with narcolepsy
11:10 AM - 11:25 AMBiography
Charlotte is a postdoctoral research fellow at the Appleton Institute at Central Queensland University and completed her PhD in 2020. Charlotte’s research investigates the optimal timing of sleep and nutrition, particularly for those working non-standard hours such as shiftworkers. Charlotte is an emerging research leader in the field of chrononutrition, and her research on the impacts of meal timing at night on work performance has informed practice and policy for shiftworkers.
Dr Aaron Schokman
Research Fellow
University of Sydney
Lived experience of sleep disorders (featuring recorded interviews), and personal views and experiences living with narcolepsy
11:10 AM - 11:25 AMBiography
Dr. Aaron Schokman is a lived experience Research Fellow at The University of Sydney. He is currently affiliated with the Central Clinical School, Charles Perkins Centre and the ARC Centre of Excellence for Children and Families over the Life Course. Aaron was diagnosed with narcolepsy type 1, a rare and debilitating sleep disorder in his late teens that sparked his interest in research, co-design and all things sleep.
Assoc Prof Andrew Vakulin
Associate Professor - Medical Sciences
Flinders University
Experiences establishing a consumer group with the Sleep Health Foundation and Adelaide Institute for Sleep Health
11:25 AM - 11:40 AMBiography
A/Prof Vakulin leads the “Neuroscience including novel Biomarkers” research theme ay FHMRI Sleep Health. He investigates the impact of sleep loss and sleep disorders on daytime sleepiness, sleep neurobiology and neurobehavioral function, particularly in relation to operational performance and accident risk. His research focuses on biomarker discovery and validation to develop innovative ways to assess fitness to drive/work in patients with sleep disorders. He has also led the development of innovative online sleep health decision support tools and digital sleep health solutions, utilising new sleep monitoring technologies for simplified screening, diagnosis and management of sleep disorders in the community and primary care.
Assoc Prof Nicole Lovato
Associate Professor Sleep Health
Flinders University
Experiences establishing a consumer group with the Sleep Health Foundation and Adelaide Institute for Sleep Health
11:25 AM - 11:40 AMBiography
Nicole Lovato is an Associate Professor of Sleep Health, ARC Early Career Linkage Fellow, and Psychologist (provisional) at Flinders University. She has extensive experience in insomnia and circadian physiology, with close to 100 peer-reviewed publications. Her research is particularly focused on the development of new, innovative therapeutic interventions and models of care for the management of chronic insomnia and circadian rhythm sleep disorders and associated chronic mental and physical ill-health. She works closely with consumers, primary care, and other key stakeholders to translate this knowledge to make best-practice sleep healthcare accessible and cost-effective for the community.
Assoc Prof Moira Junge
CEO
Sleep Health Foundation
Chair
Biography
Dr Camilla Hoyos
Senior Research Fellow
Macquarie University
Chair
Biography
