Symposium session: Improving the understanding of sleep in children with a neurodisability
Tracks
Track 1
Thursday, October 17, 2024 |
1:45 PM - 3:25 PM |
Arena 1B |
Details
This session focuses on sleep in children with neurodisability conditions who are high-risk for sleep difficulties. It will present original data from a large multi-centre study in Australia as well as insights from international expert Associate Professor Evelyn Constantin. The session will cover prevalence of respiratory and non-respiratory sleep difficulties in Australian Children with neurodisability, access to specialist services and priority areas for focus as reported by parents in a large cross-sectional survey. It will also discuss the approach to management of sleep problems in children with neurodisability, highlighting gaps in current evidence, challenges, and future directions for research.
Speaker
Dr Moya Vandeleur
Paediatric Respiratory And Sleep Specialist
Royal Children’s Hospital
How common are sleep problems in Australian children with neurodisability?
1:45 PM - 2:05 PMBiography
Dr Moya Vandeleur is an experienced paediatric respiratory and sleep medicine specialist at RCH, Melbourne. Her clinical work involves children with general respiratory and sleep problems however she has a special interest in caring for patients with sleep disordered breathing and those requiring ventilatory support. She has a number of research interests that reflect her clinical practice. She is the lead for sleep research at RCH, the paediatric representative for the Australasian Sleep Association Clinical Committee and Conference Organising Committee and the Coordinator of Advanced Training for Paediatric Sleep Medicine on the Advanced Training Committee in Respiratory and Sleep, RACP.
Dr Natalie Pride
Clinical Neuropsychologist
The Children's Hospital at Westmead
What do parents of children with neurodisability want us to prioritise for their child’s sleep?
2:05 PM - 2:25 PMBiography
Dr Natalie Pride is a clinical neuropsychologist and Neuropsychology Program Lead at the Kids Neuroscience Centre, The Children’s Hospital at Westmead. She has extensive experience in neurodevelopmental conditions, particularly Neurofibromatosis type 1 (NF1). She leads the NF1 Learning Clinic, providing specialised care for affected families.
Dr Pride’s research program focuses on advancing paediatric care of children facing serious health challenges and bridges fields of neuropsychology, sleep psychology, clinical trial design and genetics. Dr Pride is lead investigator on a number of projects including a US Army funded study investigating the prevalence, neuropsychological impact and biopsychosocial risk factors of sleep disturbance in children with NF1. She was recently awarded the Francis S Collins Scholar Program to understand and treat sleep disorders in NF1.
Assoc Prof Jasneek Chawla
Paediatric Respiratory And Sleep Medicine Physician
Queensland Children's Hospital
What do other specialty colleagues tell us about managing sleep in children with neurodisability?
2:25 PM - 2:45 PMBiography
A/Professor Jasneek Chawla is a Paediatric Respiratory and Sleep Medicine Specialist at Queensland Children’s Hospital, Brisbane and leads the Kids Sleep Research Group at the Child Health Research Centre, University of Queensland. Her research interests include optimising sleep in children with complex disability. She is currently leading a multi-centre MRFF (government) funded study focused on improving the diagnosis and management of sleep disorders in children with neurodisability. She is a board member for the Australasian Sleep Association and regular speaker for the Sleep Health Foundation. Jas is a strong advocate for children with disability and complex chronic medical conditions and collaborates widely with many consumer representative organisations and individuals with lived experience through her research.
Prof Evelyn Constantin
Paediatrics / McGill University
How should we approach management of sleep in children with neurodisability: International insights
2:45 PM - 3:05 PMBiography
Evelyn's research focuses on sleep in children. She studies the effect of obstructive sleep apnea (OSA) on cardiometabolic risk, neurocognitive deficits and quality of life, as well as the impact of treatment for sleep disorders on specific health outcomes and the promotion of healthy sleep habits. She has developed a research program with interdisciplinary collaborations to explore sleep issues in children with chronic conditions, including neurodevelopmental disabilities and genetic or metabolic conditions. One current focus is the evaluation of sleep issues in children with cerebral palsy, an understudied population. One of the few clinician-scientists in pediatric sleep medicine in Canada trained in epidemiology, she has established a large longitudinal research database for our pediatric sleep laboratory - the only such cohort in the country. Our studies completed to date using this unique longitudinal cohort confirm its value as a springboard for future studies on obstructive sleep apnea and its treatment in children.
Prof Karen Waters
Head, Sleep Medicine
The Children's Hospital at Westmead
Chair
Biography
Dr Miriam Cameron
Respiratory and Sleep Consultant/phd Student
Queensland Children's Hospital