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Symposium session: The interface between sleep and neurology / palliative care in paediatric patients

Tracks
Track 2
Thursday, October 17, 2024
3:45 PM - 5:30 PM
Arena 1A

Details

Sleep disordered breathing, breathlessness, and pain are some of the challenges faced by children and their families who have life limiting and neurological conditions such as neuromuscular disorders, multiple sclerosis neurofibramatosis and cerebral palsy. This session focuses on sleep issues, symptom burden and how increasing use of home ventilation (e.g. NIV) has been used within these paediatric populations.


Speaker

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Dr Moya Vandeleur
Paediatric Respiratory And Sleep Specialist
Royal Children’s Hospital

Introduction – sleep in special populations

3:45 PM - 3:55 PM

Biography

Dr Moya Vandeleur is an experienced paediatric respiratory and sleep medicine specialist at RCH, Melbourne. Her clinical work involves children with general respiratory and sleep problems however she has a special interest in caring for patients with sleep disordered breathing and those requiring ventilatory support. She has a number of research interests that reflect her clinical practice. She is the lead for sleep research at RCH, the paediatric representative for the Australasian Sleep Association Clinical Committee and Conference Organising Committee and the Coordinator of Advanced Training for Paediatric Sleep Medicine on the Advanced Training Committee in Respiratory and Sleep, RACP.
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Dr Adelaide Withers
Respiratory And Sleep Consultant
Perth Children's Hospital

The relationship between respiratory health, sleep dysfunction and mental health in children and adolescents with neuromuscular disorders

3:55 PM - 4:10 PM

Biography

Dr Adelaide Withers is a respiratory and sleep consultant at Perth Children’s Hospital and a researcher in the Children’s Lung Health Team at Telethon Kids Institute. She is currently completing her PhD investigating factors predicting the onset of respiratory failure in children with neuromuscular disorders and is the respiratory clinical lead for the neuromuscular service. She is part of the complex airway team with vast experience in managing children with complex obstructive sleep apnoea, airway anomalies and those requiring tracheostomy insertion and ventilation. Her other research interests include tracheobronchomalacia in cystic fibrosis, use of humidified high flow oxygen during aeromedical transfer and novel technologies for diagnosing obstructive sleep apnoea. She is the co-host of the Child and Adolescent Health Service Podcast, Kids Health Matters, where she discusses topics such as sleep problems in children and vaping.
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Prof Evelyn Constantin
Paediatrics / McGill University

Obstructive sleep apnoea in children with cerebral palsy

4:10 PM - 4:25 PM

Biography

Evelyn's research focuses on sleep in children. She studies the effect of obstructive sleep apnea (OSA) on cardiometabolic risk, neurocognitive deficits and quality of life, as well as the impact of treatment for sleep disorders on specific health outcomes and the promotion of healthy sleep habits. She has developed a research program with interdisciplinary collaborations to explore sleep issues in children with chronic conditions, including neurodevelopmental disabilities and genetic or metabolic conditions. One current focus is the evaluation of sleep issues in children with cerebral palsy, an understudied population. One of the few clinician-scientists in pediatric sleep medicine in Canada trained in epidemiology, she has established a large longitudinal research database for our pediatric sleep laboratory - the only such cohort in the country. Our studies completed to date using this unique longitudinal cohort confirm its value as a springboard for future studies on obstructive sleep apnea and its treatment in children.
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Dr Miriam Cameron
Respiratory and Sleep Consultant/phd Student
Queensland Children's Hospital

Sleep in paediatric patients with life limiting conditions: Special considerations

4:25 PM - 4:40 PM

Biography

Dr Miriam Cameron is a Paediatric Respiratory and Sleep Physician at the Queensland Children's Hospital. She is also a PhD candidate with the University of Queensland, investigating aspiration lung disease in children.
Dr Freya Nicholas
Paediatric Palliative Care Specialist
Queensland Children’s Hospital

Interfacing with sleep medicine: The palliative care team’s perspective

4:40 PM - 4:55 PM

Biography

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Assoc Prof Jasneek Chawla
Paediatric Respiratory And Sleep Medicine Physician
Queensland Children's Hospital

Chair

Biography

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Dr Miriam Cameron
Respiratory and Sleep Consultant/phd Student
Queensland Children's Hospital

Chair

Biography

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