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Symposium session: Transitional care for paediatric sleep patients

Tracks
Track 4
Friday, October 18, 2024
10:30 AM - 12:00 PM
Room 6

Details

Children with a range of sleep disorders such as narcolepsy and other disorders of central hypersomnolence are confronted with many issues when transiting into adult care, including safety on the roads, career choices and so forth. There is also a growing population of children on non-invasive ventilation and pressure support therapy who need ongoing management into young adulthood. However, this transition process is not always a smooth one, and can generate anxiety and resistance from teenagers and their parents. This symposium will address some of the issues that can arise during this process and discuss potential pathways to improve the experience.


Speaker

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Assoc Prof Arthur Teng
Senior Staff Specialist And Dept Head.
Sydney Children's Hospital

Chair: Introduction - concept of Transitional Care

10:30 AM - 10:35 AM

Biography

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Prof Gillian Nixon
Paediatric Respiratory And Sleep Physician
Monash Children's Hospital

Pressure support therapy (CPAP) - transitional care issues from the paediatric perspective

10:35 AM - 10:50 AM

Biography

Adj Clin Prof Gillian Nixon is a paediatric respiratory and sleep physician. She is Deputy Director of the Melbourne Children’s Sleep Centre at Monash Children’s Hospital and has an academic appointment at Monash University. Her research focusses on improvements in the diagnostic and treatment pathway for obstructive sleep apnoea in children, including developing simplified diagnostic tools and driving improvements in evidence-based treatment pathways. She has held a NHMRC Translating Research into Practice fellowship and has a postgraduate certificate in Health Services Management. In 2018-2020 she was seconded to the Victorian state government on a quality improvement project on paediatric adenotonsillectomy.
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Dr Amanda Griffiths
Consultant Respiratory & Sleep Paediatrician
Royal Children's Hospital

Transition of young people with complex and neurodevelopmental disorders on respiratory support

10:50 AM - 11:05 AM

Biography

Mandie is a paediatric respiratory and sleep physician and current Director of the Royal Children’s hospital (RCH) Sleep Unit, Melbourne. She also holds honorary Consultant appointments at the Victorian Respiratory Support Service (VRSS) at the Austin Hospital & Cabrini Hospital Sleep Unit. She trained in paediatrics at the RCH in Melbourne, before completing a 4 yr Respiratory & Sleep fellowship in both Melbourne (Monash and RCH) and Perth (Princess Margaret Hospital). She also completed a Sleep Mini-fellowship at the Froedtert Hospital, Milwaukee, Wisconsin in a program run by the American Academy of Sleep Medicine. She has worked in the RCH neuromuscular clinic since it's opening, set up the respiratory & sleep transition pathways between the RCH & VRSS, & has a special ongoing interest in improving transition of neuromuscular patients to adult care.
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Dr Amanda Piper
Clinical Lead, Respiratory Support Service
Royal Prince Alfed Hospital

NIV transitional care issues from the adult perspective

11:05 AM - 11:20 AM

Biography

Amanda has more than 30 years' experience in the assessment, management and follow up of people living with hypercapnic respiratory failure. She has authored more than 100 papers and 16 book chapters on topics related to hypercapnia and non-invasive ventilation. Amanda has also been involved in the development of clinical guidelines for the American Thoracic Society on the assessment and use of home ventilation for patients with stable, ambulatory Obesity Hypoventilation Syndrome and stable hypercapnic COPD patients.
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Dr Sheila Sivam
Staff Specialist
Royal Prince Alfred Hospital / Woolcock Institute

Problems encountered in transitional care of teenagers with narcolepsy and associated disorders

11:20 AM - 11:35 AM

Biography

Dr. Sivam is a Respiratory and Sleep Specialist. After completing her medical training in Nova Scotia, Canada, she undertook further specialist training in Boston, Massachusetts and Pittsburgh, Pennsylvannia, USA. In Sydney, she completed her Respiratory and Sleep Medicine Fellowship requirements at Royal Prince Alfred Hospital and Woolcock Institute of Medical Research (WIMR). Dr. Sivam runs the Narcolepsy and Hypersomnolence Clinic at WIMR and is a member of the Australasian Sleep Association (ASA)Medicines Subcommittee, which is currently working on advocating for improved access to first line medications and research opportunities for narcolepsy and idiopathic hypersomnia. In addition, she is a member of the ASA Hypersomnolence Data Registry Working Group and Co-Chair of the Sydney Health Partners Sleep Health Clinical Academic Group. Dr. Sivam also works part time at the Royal Prince Alfred Hospital Cystic Fibrosis Service.
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Assoc Prof Arthur Teng
Senior Staff Specialist And Dept Head.
Sydney Children's Hospital

Driving safety in narcolepsy/ Patient experience

11:35 AM - 11:50 AM

Biography

Conjoint Associate Professor ARTHUR TENG is a senior staff specialist paediatrician, sleep physician and Head of the Department of Sleep Medicine at the Sydney Children’s Hospital, Randwick. Currently he is Conjoint Associate Professor of Medicine at the University of New South Wales (UNSW) and Clinical Senior Lecturer at the University of Tasmania. He was Respiratory Fellow and Chief Resident at the then Prince of Wales Children’s Hospital before training with Professor Colin Sullivan at the David Read Laboratories, University of Sydney, about ten years following the invention of CPAP. His clinical and research interests include the neuropsychological impact of sleep disorders in children, parasomnias, infantile obstructive sleep apnoea and childhood narcolepsy. He has published across the broad spectrum of paediatric sleep disorders in peer-reviewed journals including Sleep, J Applied Physiology, AJRCCM, ERJ, Sleep Medicine, J of Sleep Research, Respirology etc, and several text book chapters. He has supervised and is currently supervising Honours, Masters and PhD Projects through the Universities of Sydney and NSW. He has trained over 20 scientists, paediatric sleep, and respiratory physicians, from Australia and around the world including New Zealand, Hong Kong, China, Malaysia, Singapore, UK, India, Canada, Taiwan and Brazil.
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Prof Brendon Yee
Respiratory And Sleep Physician
Royal Prince Alfred Hospital

Chair

Biography

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