ADEA Masterclass: Creating effective and meaningful research partnerships with the diabetes community
Tracks
Breakout 8: Meeting Room 8
Thursday, August 22, 2024 |
4:30 PM - 6:00 PM |
Meeting Room 8 |
Speaker
Mr David Burren
Researcher
Nascence Biomed
ADEA Masterclass: Creating effective and meaningful research partnerships with the diabetes community
Biography
David is known as a patient advocate and diabetes-technology authority (as the Bionic Wookiee), presenting at diabetes conferences for some years now. Through Nascence Biomed he is involved in AID development. He's lived with T1D since 1982, and has worked with the Baker Institute on AID clinical trials since 2019.
Mr Tim Benson
Principal
Nile Health
ADEA Masterclass: Creating effective and meaningful research partnerships with the diabetes community
Biography
Tim has been a health consumer representative & advocate for over 27 years.
His former roles include: advisor to two federal Health Ministers (as a member of the National Lead Clinicians Group), member of the WA Clinical Senate Executive, the WA Health Diabetes & Endocrinology Clinical Network, the Diabetes Australia Medical, Education and Scientific Advisory Council, the board of Diabetes WA, the Diabetes Guidelines Expert Advisory Group at Baker IDI Heart & Diabetes Institute; and Boardmember of Health Consumers’ Council WA and Consumers Health Forum of Australia.
Amongst numerous current roles, he is a Patient for Patient Safety Champion for the World Health Organisation; member of the Diabetes Standard Set Project Group for the International Consortium of Health Outcomes Measurement, and the Australian representative on the Six Degrees Medical T2D DEEP Virtual Advisory Board.
Earlier this year, he was a co-author of The Lancet Diabetes & Endocrinology article, “Living Between Two Worlds - What Researchers, Clinicians and Community Organisations Can Learn from Diabetes Lived Experience”.
He has presented at a number of conferences, including: the "Asia Pacific Conference on the Metabolic Syndrome"; the University of WA Health Forum (Diabetes – Priorities, Targets, & Annual Cycle of Care), and the United Nations conference on "Global Health Challenges - Achieving the Millennium Development Goals”.
Ms Meaghan Read
Community Engagement Lead
Diabetes Victoria
ADEA Masterclass: Creating effective and meaningful research partnerships with the diabetes community
Biography
Meaghan Read is the Community Engagement Lead at Diabetes Victoria, a member of the ACADI co-design platform and the Chair of the Community Engagement Panel for the Australasian Type 1 Diabetes Immunotherapy Collaborative (ATIC). Meaghan brings 37 years of lived experience of type 1 diabetes along with professional experience in laboratory, clinical and pharmaceutical research to these roles. She holds a BSc(Hons) from The University of Melbourne together with qualifications in Diabetes Education and Community Engagement. Meaghan is a passionate diabetes advocate with great passion for community engagement and co-design in the research sector.
Candice Hall
Research Project Manager
St Vincent's Institute of Medical Research
ADEA Masterclass: Creating effective and meaningful research partnerships with the diabetes community
Biography
Candice Hall is the project manager for the Australasian Type 1 Diabetes Immunotherapy Collaborative (ATIC) alongside Dr. Michaela Waibel. She leads the community engagement theme and facilitates the ATIC Community Engagement Panel. Candice also manages the Diabetes and Endocrinology clinical trial coordination team at The Royal Melbourne Hospital. With over a decade of experience in type 1 diabetes prediction and prevention research, and qualifications in Diabetes Education and Public Health, Candice is dedicated to advancing diabetes research and fostering community involvement in research initiatives.
Dr Ashley Ng
POC Chair
Australian Diabetes Educators Association
Chairperson
Biography
Dr Ashley Ng is a diabetes advocate, a diabetes researcher and accredited practising dietitian. Her lived experience has led to her passion in consumer and community involvement in research and healthcare improvement. Ashley's areas of interest in research include supporting young adults with diabetes during life transitions, digital health solutions in diabetes care and community engagement, including peer support.